Utterly Unscientific (But Fun) Gluten-Free Taste Testing ~ Cookies

Posted in celiac, coeliac, Coeliac Disease, cookies, gluten, gluten free, Prewett's by buzzanniebee

We coeliacs have to look far and wide for our fun (although I concede that eating gluten-free [GF] foods is much easier than it was even 10 years ago).

So I decided to invite a few coeliacs around to Bee HQ to sample some GF cookies. Just an excuse to forego a proper breakfast and move straight to the carb/sugar rush? Perhaps, but also simply a bit of fun and a good opportunity to meet some new people.

Where did I recruit these lovely cookie-eating-helpers? The town I live in has a group FaceBook page specifically for parents – people on it are helpful, polite and friendly so I decided that was a good place to start. I was hoping for a group of 5-6, but conducted the taste testing on a weekday morning when I was not teaching; the majority of people were of course at work, and others had child-minding issues. Oh well, all the more cookies for us – but thank you to those who were enthusiastic but couldn’t come along.

I will say upfront that this was in no way a scientific experiment. To be clear, A) there were only 3 of us doing the tasting. B) The cookies and biscuits were all slightly different, though themed around CHOCOLATE (hooray!) In a proper taste testing, you would have 6 plain digestives, for example, and conclude which is the best. Unfortunately the range of GF foods does not allow this when it comes to cookies, though I intend to do a bread tasting, which would better meet that criteria. The other thing to mention is that all the biscuits/cookies were from a GF section of the shop. There are some perfectly lovely GF options (the Mrs Crimble’s range for example) of macaroons etc, but these are aimed at what I believe prisoners call the “Gen Pop” (general population) and what some coeliac wags call “Muggles”!

I should also be clear that all cookies were bought by me, and I have nothing to gain from the results, other than hopefully giving you some useful information here on this page.

So, with hearty thanks to my two new coeliac buddies, Jackie and Sarah, I give you the low-down on which cookies left us cold and which could have passed for ‘normal’.

The five I chose to test were as follows, as they were all available on the same day from my High Street, here in the ‘burbs:

TESCO FINEST – FREE FROM All Butter Chocolate Millionaire. 5 biscuits, 185g, £1.35
DOVES FARM – ORGANIC AND FREE FROM Double Chocolate Cookies. 7 cookies, 180g, £2.25, bought from my High St, independent health food shop
MARKS AND SPENCER – MADE WITHOUT WHEAT RANGE Triple Chocolate Cookies 10 cookies, 170g, £2.50
PREWETT’S – GLORIOUSLY GLUTEN FREE Rich Triple Chocolate Cookies 8 cookies, 150g, £2.29 bought in my local Waitrose, which didn’t have any own-brand GF choc biscuits or cookies for us to test.
PREWETT’S Milk Chocolate Digestives 14 biscuits, 155g, £1.50 bought in Sainsbury’s which also didn’t have any own- brand for the taste-testing on the day I shopped.

So what was the result? Our least favourites were described as “dry, bland, powdery, hard, greasy, oily, insubstantial, pale”. The ones we much preferred solicited descriptions such as, “crisp, chocolatey but not too sweet, melt in the mouth, nice balance of bite and crumble”.

The make which all 3 of us least liked was the Doves Farm (“powdery, gritty, not much flavour, dry, brittle, bland”) and the best (also unanimously) were the Prewett’s Triple Chocolate Cookies (“appetising, chunky, chocolate-coated, delicious”).

I very rarely buy biscuits (unless we have coeliac visitors) because, once opened, I lack the will-power to not plough on through the entire packet before the kettle has even boiled. I had never even come across the Prewett’s make before this week, so that was an interesting find for me. So who are they? Now based in Bristol, they do a large range of healthy and free-from foods, and you can order from their website here as well as finding their products in supermarkets and health food shops nationwide. Interestingly, their Chocolate Digestives also came out well, despite looking rather less interesting.

So, my new pals and I discussed good GF recipes, and made various recommendations to each other, including this book, “The GF Cook-book for Kids”; the No G website; A Basing Cakes; an entirely GF cafe/restaurant (how often do you hear that?!!) near me here in Hertfordshire called The Saddlery Cafe which I cannot wait to visit and Atkins and Potts who apparently do exquisite GF sauces.

So a good morning’s work. Unscientific for sure, but a lot of fun, and we all agreed that the trials and tribulations of having Coeliac Disease are diminished when shared between friends over a cup of tea or coffee. And cookies.

Annie Bee x

18Sep2015

Updated NICE Guidelines for Coeliacs in the UK

Posted in celiac, coeliac, Coeliac Disease, NHS, NICE guidelines by buzzanniebee

I follow a couple of Facebook groups which are there to support coeliacs in the UK through their gluten free journey. There is a diverse spread of people of all descriptions on there, including those who are still ‘at sea’ with what they can and cannot eat after a diagnosis of Coeliac Disease (CD). This can lead to debate, confusion and unhelpful (but sometimes humorous) posts; it can also unfortunately descend into sarcasm and downright vitriol. The vast majority of the time though, there is a great deal of helpful information. Hooray for camaraderie amongst coeliacs !

All coeliacs, when diagnosed, are on a very steep learning curve for the management of their disease, which is often diagnosed (or not – see my blog post on misdiagnoses) after a troubled descent into ill-health and dramatic weight loss. I was so ill before my diagnosis, I assumed I was dying of cancer, but then I am not known for my eternal optimism! Mind you, the unwarranted hysterectomy was a bit of a downer. Add to this the horrid business that CD can’t be diagnosed unless the patient is still eating gluten at least once a day for 6 weeks before tests can be accurately carried out, and you have a tranche of very upset, ill and often confused people on your hands.

Quite a few of the FB posts on these sites are about how coeliacs are being dealt with by the NHS, whether it is the GP or consultants. So it is interesting to note that NICE (the National Institute for Health and Care Excellence) have just brought out some updated guidance for health professionals. If you are struggling with getting tests done, or being pushed from pillar to post, but suspect CD, some of this could be worth knowing.

Testing should be offered to people who are presenting with any of the following:

- persistent unexplained abdominal or gastrointestinal symptoms
- faltering growth
- prolonged fatigue
- unexpected weight loss
- severe or persistent mouth ulcers
- unexplained iron, vitamin B12 or folate deficiency
- type 1 diabetes, at diagnosis
- autoimmune thyroid disease, at diagnosis
- irritable bowel syndrome (in adults)
first‑degree relatives of people with coeliac disease.

The guidelines also suggest that all CD sufferers are offered an annual review (either by the GP or a dietician with specialist knowledge of CD) where the following is assessed:

measure weight and height
review symptoms
consider the need for assessment of diet and adherence to the gluten‑free diet
consider the need for specialist dietetic and nutritional advice.

If you have a good, sympathetic and helpful GP, you hopefully won’t need to cite any of this information, but the more educated we are about what is expected of our health workers, the better. NICE guidelines are just that though: they are recommendations for best practice rather than ‘rules’.

In the BMJ’s roundup of the updated NICE guidelines, they point out that

A delayed diagnosis can lead to serious long-term complications, such as osteoporosis, infertility, and small bowel cancer

So if you are getting the runaround and think it could be CD, you could take a copy of these guidelines with you to the GP.

Life as a coeliac after diagnosis is relatively simple, though not without its frustrations and stresses.

And there is always some humour out there if you look hard enough.

Annie Bee x

9Sep2015

The Importance Of Food Packaging To Coeliacs

Posted in barcodes, celiac, coeliac, Coeliac Disease, food labelling by buzzanniebee

I am that woman you see at the supermarket who looks like she has all the time in the world, reading the backs of foodstuffs, with seemingly nothing better to do. And as I am the resident Fridge Fairy here at Bee HQ, 90% of the time it is me who does the food shopping for the family. They know me so well at my local Sainsbury’s most of the staff and I are on first name terms.

I was diagnosed with Coeliac Disease (CD) about 12 years ago, and within the last 2 years, one of the Baby Bees has developed a lactose intolerance. Add to that the usual likes and dislikes of an average family, and you have quite a specialist job on your hands (~ where is my job spec? when is my next pay rise and what about my pension?).

As a coeliac, I have to avoid gluten in my diet; gluten is a protein found in wheat, rye and barley. Some people also react to a similar protein found in oats (I do unfortunately ~ I miss you, flapjacks). So the most obvious list of things to avoid include

bread
pasta
breakfast cereals
flour
pastry
pizza bases
cakes
biscuits.

But gluten can be hidden in the most unlikely foods, such as ice-cream (where wheat is used as a thickener) and on frozen chips. My point is that reading labels (food and drink) and understanding what to look for, has been a bit of an education over the years, but I have now got it down to a fine art. I check just about every single thing that goes in the trolley, which is perhaps a bit over the top (although, maddeningly, ingredients do change every now and again on products which used to be GF) but rather that than be ill for days and risk bringing on symptoms which can include bloating, diarrhoea, nausea, constipation, tiredness, mouth ulcers, sudden or unexpected weight loss (but not in all cases), hair loss and anaemia. (Yes, CD is a laugh a minute). I feel I should add that my family are also very good at checking labelling.

Thankfully the laws governing labelling in the UK are both clear and helpful. If a product contains any of the following allergens the manufacturer must say so clearly on the label, and list them in the ingredients:

celery
cereals containing gluten – including wheat, rye, barley and oats
crustaceans – including prawns, crab and lobster
eggs
fish
lupin
milk
molluscs – including squid, mussels, cockles, whelks and snails
mustard
nuts
peanuts
sesame seeds
soya beans
sulphur dioxide or sulphites at levels above 10mg per kilogram or per litre

So imagine my delight when I very occasionally come across a food label which makes me smile. This barcode is a current favourite, found on the lactose free milk I buy:

There are some other examples, though not enough. I think the more the merrier ~ we coeliacs need as much fun and entertainment as we can get, and we don’t care where it comes from, even the supermarket aisles.

Have a look out for any eccentric barcodes or food labels and send them through.

Happy hunting

Annie Bee x

28Apr2015

Why My Heart Sinks When I Am Handed The Allergy Booklet

Posted in allergies, celiac, Coeliac Disease, gluten by buzzanniebee

Hello again

I recently joined an incredibly interesting, friendly and helpful Facebook page entitled, “Coeliacs Eat Out Too …… They Also Live Everyday Lives”. If you suffer from Coeliac Disease, it is always nice to be able to share info, moan a bit and support others who have this auto-immune disease.

Recently, I have noticed a phrase which has started popping up, and not necessarily in a good way. One fellow coeliac called it “being given the folder treatment“. Here in the UK some new legislation came out a few months ago which requires all places where food is sold to provide allergen information on everything they offer. This is a good thing right? Yes, without a doubt. The problem arises when the restaurant hands you the dreaded folder which contains all the information, covering all allergies, from nuts to crustaceans and everything in between. It can run to about a hundred pages of closely-typed script. Here are some coeliac’s views on the subject:

~ I hate ‘the folder’. It’s poor customer service pretending to be good service.

~ The whole file was so confusing as ingredient listings were spread over lots of pages. The main part of the meal was listed in one section, then sauces in another, sides in another so I had to check lots of different pages for each item on the menu. I ended up choosing the first thing I found as I couldn’t be bothered to plough through the information.

~ It just annoys me. Vegetarians get a nice little green ‘v’ on the menu and are pretty well catered for, and we have to wade through this massive folder!

I have encountered the folder a couple of times – once it took me over 20 minutes in the pub to cross-reference everything in the folder against the 3 menus on offer that day (lunch, specials and pre-Christmas). I was stressed and harassed by the time I came to order, as was my fellow diner. I will not go back there again.

Some coeliacs say that it is better to get the folder treatment than have the waiter say “what is gluten?” (if that happens, I walk out). I agree, but there has to be an easier way. What is wrong with the chef or the company marking all the menus for us?

If you are interested to know what the new rules are, have a look at this guidance from the UK’s Food Standards Agency:

https://www.food.gov.uk/sites/default/files/food-allergen-labelling-technical-guidance.pdf

The general advice being given to food businesses about allergies is this:

In the UK, it is estimated that 1-2% of adults and 5-8% of children have a food allergy. This equates to around 2 million people living in the UK with a food allergy, this figure does not include those with food intolerances. This means the actual number of affected people living with food allergy and/or food intolerance is considerably more. 12. An allergic reaction can be produced by a tiny amount of a food ingredient that a person is sensitive to (for example a teaspoon of milk powder, a fragment of peanut or just one or two sesame seeds). Symptoms of an allergic reaction can range from mild symptoms such as itching around the mouth and rashes; and can progress to more severe symptoms such as vomiting, diarrhoea, wheezing and on occasion anaphylaxis (shock). Around ten people in the UK die from allergic reactions to food every year.

There is no cure for food allergy. The only way to manage the condition is to avoid food that makes the person ill. This can be achieved by checking ingredients details on labels of prepacked foods and being provided allergen ingredients information for non-prepacked foods. Therefore, it is very important that food businesses provide clear and accurate information about allergenic ingredients in their products.