Utterly Unscientific (But Fun) Gluten-Free Taste Testing ~ Cookies

Posted in celiac, coeliac, Coeliac Disease, cookies, gluten, gluten free, Prewett's by buzzanniebee

We coeliacs have to look far and wide for our fun (although I concede that eating gluten-free [GF] foods is much easier than it was even 10 years ago).

So I decided to invite a few coeliacs around to Bee HQ to sample some GF cookies. Just an excuse to forego a proper breakfast and move straight to the carb/sugar rush? Perhaps, but also simply a bit of fun and a good opportunity to meet some new people.

Where did I recruit these lovely cookie-eating-helpers? The town I live in has a group FaceBook page specifically for parents – people on it are helpful, polite and friendly so I decided that was a good place to start. I was hoping for a group of 5-6, but conducted the taste testing on a weekday morning when I was not teaching; the majority of people were of course at work, and others had child-minding issues. Oh well, all the more cookies for us – but thank you to those who were enthusiastic but couldn’t come along.

I will say upfront that this was in no way a scientific experiment. To be clear, A) there were only 3 of us doing the tasting. B) The cookies and biscuits were all slightly different, though themed around CHOCOLATE (hooray!) In a proper taste testing, you would have 6 plain digestives, for example, and conclude which is the best. Unfortunately the range of GF foods does not allow this when it comes to cookies, though I intend to do a bread tasting, which would better meet that criteria. The other thing to mention is that all the biscuits/cookies were from a GF section of the shop. There are some perfectly lovely GF options (the Mrs Crimble’s range for example) of macaroons etc, but these are aimed at what I believe prisoners call the “Gen Pop” (general population) and what some coeliac wags call “Muggles”!

I should also be clear that all cookies were bought by me, and I have nothing to gain from the results, other than hopefully giving you some useful information here on this page.

So, with hearty thanks to my two new coeliac buddies, Jackie and Sarah, I give you the low-down on which cookies left us cold and which could have passed for ‘normal’.

The five I chose to test were as follows, as they were all available on the same day from my High Street, here in the ‘burbs:

TESCO FINEST – FREE FROM All Butter Chocolate Millionaire. 5 biscuits, 185g, £1.35
DOVES FARM – ORGANIC AND FREE FROM Double Chocolate Cookies. 7 cookies, 180g, £2.25, bought from my High St, independent health food shop
MARKS AND SPENCER – MADE WITHOUT WHEAT RANGE Triple Chocolate Cookies 10 cookies, 170g, £2.50
PREWETT’S – GLORIOUSLY GLUTEN FREE Rich Triple Chocolate Cookies 8 cookies, 150g, £2.29 bought in my local Waitrose, which didn’t have any own-brand GF choc biscuits or cookies for us to test.
PREWETT’S Milk Chocolate Digestives 14 biscuits, 155g, £1.50 bought in Sainsbury’s which also didn’t have any own- brand for the taste-testing on the day I shopped.

So what was the result? Our least favourites were described as “dry, bland, powdery, hard, greasy, oily, insubstantial, pale”. The ones we much preferred solicited descriptions such as, “crisp, chocolatey but not too sweet, melt in the mouth, nice balance of bite and crumble”.

The make which all 3 of us least liked was the Doves Farm (“powdery, gritty, not much flavour, dry, brittle, bland”) and the best (also unanimously) were the Prewett’s Triple Chocolate Cookies (“appetising, chunky, chocolate-coated, delicious”).

I very rarely buy biscuits (unless we have coeliac visitors) because, once opened, I lack the will-power to not plough on through the entire packet before the kettle has even boiled. I had never even come across the Prewett’s make before this week, so that was an interesting find for me. So who are they? Now based in Bristol, they do a large range of healthy and free-from foods, and you can order from their website here as well as finding their products in supermarkets and health food shops nationwide. Interestingly, their Chocolate Digestives also came out well, despite looking rather less interesting.

So, my new pals and I discussed good GF recipes, and made various recommendations to each other, including this book, “The GF Cook-book for Kids”; the No G website; A Basing Cakes; an entirely GF cafe/restaurant (how often do you hear that?!!) near me here in Hertfordshire called The Saddlery Cafe which I cannot wait to visit and Atkins and Potts who apparently do exquisite GF sauces.

So a good morning’s work. Unscientific for sure, but a lot of fun, and we all agreed that the trials and tribulations of having Coeliac Disease are diminished when shared between friends over a cup of tea or coffee. And cookies.

Annie Bee x

3May2015

Coeliac Disease ~ Too Many Misdiagnoses And Superfluous Surgeries

Posted in celiac, coeliac, gluten, gluten free, Misdiagnosis by buzzanniebee

Not only is Coeliac Disease (CD) tricky to spell, it is also difficult to diagnose. It can hide behind many other things, irritable bowel syndrome – IBS – probably being the most common. For a correct diagnosis to be made, there is a simple blood test which shows up certain antibodies. If positive, that is subsequently followed up by a gut biopsy. Confusingly, it is possible to have a negative blood test and yet have CD; the most important thing during this diagnosis stage is you mustn’t stop eating gluten. Counterintuitive, I know, but that will be enough to skew the results.

So what are the GPs diagnosing in our doctor’s surgeries if not CD?

Anecdotal evidence, from a group of coeliacs in the UK who were asked just that and who don’t have an axe to grind (though how many of them have lodged formal complaints, I don’t know) show the list is long and colourful. Some of the following were actual diagnoses, some were suggestions which then led to further batteries of tests, and in some cases, superfluous surgeries were carried out. So, in no particular order we have, and I am quoting,

….. hepatitis, mesenteric adenitis (swollen lymph in the abdomen), IBS, growing pains, stress, pernicious anaemia, hormone imbalance, chronic fatigue syndrome, gastric reflux, tummy bugs, bi-polar disorder, anxiety, cyclothymia (a mild form of bi-polar), stomach ulcer, depression, lactose intolerance, fibromyalgia, fructose malabsorption, nerves, anorexia, indigestion, pancreatic cancer, bowel cancer, endometriosis, mental illness, prostatitis, cystic fibrosis, crohns disease, STDs and bulimia …….

Extraneous surgeries: thyroidectomy, appendectomy and hysterectomy (me). My all-time favourite, trumping even the person who was told twice he had STDs, is hypochondria. I am not sure whether to laugh or cry!

Alarmingly the list goes on – you get the picture. But do the GPs? Often not. In their defence, CD mimics a lot of other diseases, but think of the money the NHS could save by doing the simple blood test right at the very beginning,

My tale of woe is as follows: having complained of feeling tired and generally ill for a year or so, I was tested for anaemia. My iron levels were worryingly low and didn’t improve with massive doses of supplementary iron (at one stage I was taking enough iron every day to build a small bike). My periods were called into question – “are they heavy?” An impossible question to answer in my book as I have never had anybody else’s periods so what was I comparing them to? So I said I thought they could be, yes. Next thing I am under the knife having a hysterectomy, a major op by anybody’s standards. They left my ovaries which I now call “gluten” and “free”. Thankfully I had finished my family (I was in my late 30s at this stage) and I won’t lie and say I was not happy with the upside of no contraception and no periods.

Imagine my surprise when 5-6 years later, after a terrifying 6 months of appalling symptoms, misdiagnoses galore and massive weight loss, I was told I had CD and the anaemia had been caused by the malabsorption of nutrients all along. My gastroenterologist also added that, from the state of my villi (finger-like projections in the small intestine that help absorb food more efficiently in the body) I may well have had CD for decades.

Back in 2013, the British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) and Coeliac UK, the national charity for people with coeliac disease came up with a new approach to diagnosing CD in children.

This new recommended approach will aid more accurate diagnosis, help children get treated more quickly and should bring savings to the NHS.

At that point, Dr Hilary Cass, President of the Royal College of Paediatrics and Child Health said,

“This new guidance for healthcare professionals is valuable on two fronts. Firstly, it gives paediatricians the tools to better recognise coeliac disease in children, allowing them to diagnose more swiftly and accurately. And secondly, it reduces the need to perform unpleasant, intrusive procedures on children when attempting to diagnose the condition. It’s a much needed resource to address what is a relatively common but often misunderstood disease amongst UK children. Currently on average patients have had symptoms of coeliac disease for 13 years before they are diagnosed which, for many, can result in years of discomfort and pain as well as damage to the gut which could lead to other conditions if not diagnosed and treated.

Well, I am no expert, just a coeliac sticking to the gluten free diet I must, but clearly more needs to be done in making these diagnoses fast.

Let me know what you think. Have you too been misdiagnosed along the way?

Annie Bee x

28Apr2015

Why My Heart Sinks When I Am Handed The Allergy Booklet

Posted in allergies, celiac, Coeliac Disease, gluten by buzzanniebee

Hello again

I recently joined an incredibly interesting, friendly and helpful Facebook page entitled, “Coeliacs Eat Out Too …… They Also Live Everyday Lives”. If you suffer from Coeliac Disease, it is always nice to be able to share info, moan a bit and support others who have this auto-immune disease.

Recently, I have noticed a phrase which has started popping up, and not necessarily in a good way. One fellow coeliac called it “being given the folder treatment“. Here in the UK some new legislation came out a few months ago which requires all places where food is sold to provide allergen information on everything they offer. This is a good thing right? Yes, without a doubt. The problem arises when the restaurant hands you the dreaded folder which contains all the information, covering all allergies, from nuts to crustaceans and everything in between. It can run to about a hundred pages of closely-typed script. Here are some coeliac’s views on the subject:

~ I hate ‘the folder’. It’s poor customer service pretending to be good service.

~ The whole file was so confusing as ingredient listings were spread over lots of pages. The main part of the meal was listed in one section, then sauces in another, sides in another so I had to check lots of different pages for each item on the menu. I ended up choosing the first thing I found as I couldn’t be bothered to plough through the information.

~ It just annoys me. Vegetarians get a nice little green ‘v’ on the menu and are pretty well catered for, and we have to wade through this massive folder!

I have encountered the folder a couple of times – once it took me over 20 minutes in the pub to cross-reference everything in the folder against the 3 menus on offer that day (lunch, specials and pre-Christmas). I was stressed and harassed by the time I came to order, as was my fellow diner. I will not go back there again.

Some coeliacs say that it is better to get the folder treatment than have the waiter say “what is gluten?” (if that happens, I walk out). I agree, but there has to be an easier way. What is wrong with the chef or the company marking all the menus for us?

If you are interested to know what the new rules are, have a look at this guidance from the UK’s Food Standards Agency:

https://www.food.gov.uk/sites/default/files/food-allergen-labelling-technical-guidance.pdf

The general advice being given to food businesses about allergies is this:

In the UK, it is estimated that 1-2% of adults and 5-8% of children have a food allergy. This equates to around 2 million people living in the UK with a food allergy, this figure does not include those with food intolerances. This means the actual number of affected people living with food allergy and/or food intolerance is considerably more. 12. An allergic reaction can be produced by a tiny amount of a food ingredient that a person is sensitive to (for example a teaspoon of milk powder, a fragment of peanut or just one or two sesame seeds). Symptoms of an allergic reaction can range from mild symptoms such as itching around the mouth and rashes; and can progress to more severe symptoms such as vomiting, diarrhoea, wheezing and on occasion anaphylaxis (shock). Around ten people in the UK die from allergic reactions to food every year.

There is no cure for food allergy. The only way to manage the condition is to avoid food that makes the person ill. This can be achieved by checking ingredients details on labels of prepacked foods and being provided allergen ingredients information for non-prepacked foods. Therefore, it is very important that food businesses provide clear and accurate information about allergenic ingredients in their products.

I have written a few other posts about Coeliac Disease which you might like:

https://anniebeebuzz.com/2015/04/05/am-i-getting-my-oats/

https://anniebeebuzz.com/2015/03/01/hello-my-name-is-annie-and-i-am-a-coeliac-or-is-that-celeriac/

Let me know if you have been given the folder treatment – annoying or essential? Let me know.

Annie Bee x

5Apr2015

Am I Getting My Oats?

Posted in avenin, celiac, coeliac, gluten, Health, oats by buzzanniebee

Having Coeliac Disease is not a big issue as long as you do just one simple thing: never eat gluten. Undiagnosed Coeliac Disease definitely does have negative health impacts though and if you have reasons to suspect an intolerance you should certainly get it checked by a doctor (there is a simple blood test as the first step towards diagnosis). Here is some very basic information on the disease, taken from Coeliac UK, the oldest and largest Coeliac Disease charity in the world (https://www.coeliac.org.uk/home/)

Associated conditions and complications

Dermatitis herpetiformis (DH) is a skin condition that is associated with coeliac disease. It affects approximately 1 in 3,300 people. Like coeliac disease, it is treated with a gluten-free diet.

Coeliac disease is an autoimmune disease that can occur in those people who have the genes that predispose them to the condition.For this reason, coeliac disease is more common among people with other autoimmune disorders, such as Type 1 diabetes and autoimmune thyroid disease.

Undiagnosed and untreated coeliac disease may lead to developing osteoporosis, which is where the bones become thin and brittle. This is because you may not have been absorbing calcium properly for some time.

Lactose intolerance can be associated with coeliac disease as the disease damages the part of the gut where lactase, the enzyme that breaks down lactose, is produced. Symptoms of lactose intolerance are similar to that of coeliac disease.

Lymphoma and small bowel cancer is a serious complication of coeliac disease. However, once someone with coeliac disease has been following the gluten-free diet for three to five years, their risk of developing these specific types of cancers is no greater than that of the general population.

There is also the question of whether coeliacs can eat gluten-free (gf) oats, and this week, I have been forced to do some further research into the subject as I have been very ill. This is also from Coeliac UK:

Oats contain avenin, which is a protein similar to gluten. However, research has shown that most people with coeliac disease can safely eat avenin.

Problems can occur if oats are produced in the same place as wheat, barley and rye, as the oats can become contaminated with these other grains. Only oats which are uncontaminated can be eaten by people with coeliac disease.

There are a very small number of people with coeliac disease who may still be sensitive to gluten-free, uncontaminated oat products.

When I was first diagnosed with Coeliac Disease, I had a list in my mind of the things I would miss the most: croissants, pizzas, pasta, but what trumped all that was flapjack.

Oats are such a good food. Porridge such a wonderful breakfast. When gf oats were brought onto the market several years I ago, I was tremendously happy. I definitely remember reading that, even if you tried them out and found you could tolerate them, it was sensible to only eat them every now and again. Sadly, my on-off switch in life sometimes goes AWOL and for the last couple of months, I have been eating gf oats as the basis of my breakfast pretty much every day. About 10 days I ago I started to feel poorly but it took me ages to figure out what was causing the flu-like symptoms/nausea/mental fogginess and worse. So for the time-being, I am off them while I recover. Quite a wake-up call.

Happily there are plenty of gluten-free Easter eggs to help me regain my mojo.

Annie Bee x

1Mar2015

Hello. My Name Is Annie And I Am A Coeliac (or is that Celeriac?)

Posted in celiac, coeliac, Diet, gf, gluten, gluten free, Health by buzzanniebee

Several years ago I was chatting to the manager in my local large supermarket about the very emotional issue (if you are a coeliac) of gluten free bread, and he said, “Oh yes, I know it must be terribly hard for you celeriacs”. I didn’t have the heart to correct him as he looked so earnest, but have to say that as the years have gone by, the understanding of coeliac disease (hard enough to spell, let alone live with) and the offending protein, gluten, has improved hugely. Gluten free (gf) foods are now readily available here in the UK and many restaurants have menus which are fully labelled, taking the stress out of eating out. I was out for lunch recently here in Hertfordshire though and the waitress gleefully told me she would bring me the Allergy Information Pack which turned out to be a 100 paged, closely- typed scientific report which I then had to cross-reference against the menu. Jolly helpful you might think, but by the time I had found things I liked the sound of, checked whether the tick meant it was gf or contained gluten, and finally checked if it was on that day’s lunch menu, I had lost my appetite and was stressed by the whole palaver, as was Mr Bee. All coeliacs will know this problem well. Worse though is the waiter who says, “Yes I am sure that will be fine” but comes back 10 minutes later with the type of comment which makes a coeliac shudder: “the risotto contains rice, so you can’t have that”. If that is the level of their knowledge, cast aside your napkin and RUN.

Some very lovely people I know eat a gluten free and/or wheat free diet for health reasons, even though they may not technically have this auto-immune disease (or at least have not been diagnosed). I vividly remember one waitress in a restaurant literally rolling her eyes when I told her I couldn’t have gluten (another picky eater) so I do sometimes feel like wearing a little badge which says ” REAL Coeliac” and I always, without fail now refer to it as “Coeliac Disease” when talking to people in a restaurant, cafe or shop. There does seem to be good evidence now of what is called ‘Non-Coeliac Gluten Sensitivity’ (NCGS) so we RCs (Real Coeliacs) need to embrace our brothers and sisters. The more the merrier.

There are so many lovely blogs, websites and books for coeliacs now. When you are at home, you can eat like a king. Travelling abroad has its challenges but you can print off information about the disease in loads of languages these days which at least cuts down on the chances of mistakes being made.

It is no picnic being coeliac, but there are MUCH worse problems to have.

If you want a good, in-depth article on these matters, try this: http://www.theguardian.com/lifeandstyle/2015/feb/25/gluten-free-diet-life-saving-fad

Thanks for reading. There are a few more pics here:

Annie Bee x